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Nearly 300,000 people in Texas have the life-threatening, life-altering neurological disease. It’s expensive to treat, so health insurance is crucial, although often out of reach.
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“Nobody’s making a big enough deal about this,” said Dr. Irene Stafford, an OB-GYN and maternal-fetal medicine specialist in Houston. “What will it take? Where is the funding, where are the big media campaigns? …We have babies dying from something 100% preventable, so where is the big response?”