Michele Stellato, 37, and Mira Hudson, 29, are part of a largely unseen group: young women with neurodegenerative disease ALS. They joined and eventually became leaders of Her ALS Story, a support and advocacy group whose participants include more than 150 women. The group was founded by Leah Stavenhagen, who died recently at age 33.
Stellato and Hudson join host Robin Young to share their stories, their challenges as women with ALS, and their memories of Stavenhagen, whose legacy they hope to preserve.
This article was originally published on WBUR.org.
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